“Life is not meant to be an obstacle course, although we deal with obstacles constantly disguised as day-to-day issues.”  ~ Barbara, one of our first Parkinson’s Center Advisory Board Members.

Get to Know Barbara

After spending 45 years working as an Administrative Assistant while raising three children as a single mother, Barbara wanted to see the world. When a small college in Alaska offered free room and board in exchange for volunteerism, Barbara leaned into her belief that “limits are self-imposed,” and set out on an 8,000-mile adventure. Barbara spent the next decade traveling the country, doing volunteer work, and she published a book about her journey: “The Second Career Volunteer.” When diagnosed with Parkinson’s Disease (PD) in 2011, Barbara met the challenge with the same courage and determination with which she embraced her post-retirement adventures.

Enter RVNAhealth

Barbara was a fierce advocate for raising awareness of PD. In 2023, she successfully lobbied the Town of Ridgefield to proclaim March as Parkinson’s Disease Awareness Month. When she learned about RVNAhealth’s plans to launch a Parkinson’s Center, Barbara reached out to Kate Campbell, DPT, Director of RVNAhealth’s Therapy and Parkinson’s Centers, to see how she could help. Barbara was thrilled that the program would provide much-needed education, exercise and support. Kate recalls, “She joined the first Parkinson’s Bootcamp and participated in every activity she could — floor exercises, kick boxing, even dancing. She was an inspiration to others who were just beginning their journey.”

Barbara’s mantra was to “breathe into the positives,” and that she did. As her disease progressed, she made the decision to transition to RVNAhealth’s Hospice care, with a wish to stay in her home. Her daughter, Pam, reached out to RVNAhealth and a hospice team arrived with the medical equipment she needed and caregivers in place to keep her comfortable over the next several months. True to form, Barbara still attended RVNAhealth’s Parkinson’s Center classes and bootcamp, but her new focus was on managing symptoms and enjoying time with her family.

RVNAhealth hospice volunteer, Kristy, visited Barbara weekly to offer comfort in the form of Reiki. Barbara remarked many times that during these sessions was the only time she was able to feel completely relaxed, as her tremors subsided, and she treasured the moments of peace she received. Another volunteer, Nicole, helped Barbara fulfill her dream of surprising her family with Christmas gifts – something Barbara could no longer accomplish on her own, having lost a great deal of her independence to the effects of PD. Nicole took Barbara on a shopping spree and wrapped all of the presents. Pam shared, “I’ll never forget Mom’s joy that Christmas morning.” Those moments together in their home formed priceless memories that were only possible through the care and compassion of RVNAhealth’s Hospice team.

RVNAhealth doesn’t just care FOR people, we care ABOUT them

RVNAhealth’s Hospice care is designed to meet the needs of the individual and family. Last year, 488 patients received compassionate end-of-life care from RVNAhealth, including special services like pet therapy, music therapy, and Reiki. Our volunteers provided 1,975 hours of companionship. It is our goal to support the physical, emotional, and social needs of each hospice family we are privileged to serve; however, we need your help to do this. It is only with support from people like you that we can maintain our Parkinson’s and Hospice programs and the many other healthcare services we offer for people at all stages of life.

Barbara was fond of Heather Cox Richardson’s quote, “It’s never too late to change the future.” YOU can help us change the future for those like Barbara and her family. We will always be here for you, too.

Please consider making a donation today.

You can make your tax-deductible gift to support RVNAhealth by visiting our donor page and remember, a matching gift from your employer could double your donation, furthering our mission to deliver unmatched, compassionate healthcare when and where it is needed. Click here to see if your gift is match-eligible and to learn the easy steps you can take to maximize your impact!

If you are interested in learning more about volunteering in our Hospice program, please contact Stephanie Peppe at speppe@RVNAhealth.org.

Friends, peers on the high school leadership initiative where she served as President, and her mother all assumed the baggy clothes Ruth-Ann Bucknor suddenly preferred were just fashion choices. They were actually how she hid her unplanned pregnancy for nearly six months. Born in Jamaica, Ruth-Ann was raised in Connecticut by a single mother devout to her cultural religious foundation who had high expectations and standards for herself and her daughter. Isolated and disappointed in herself, Ruth-Ann feared the news of her unplanned pregnancy would devastate her mother.

An exceptional student and curious young woman by nature, Ruth-Ann researched available resources for young mothers, made a list of questions, and a pre-natal doctor’s appointment. She felt judged and shamed during the visit because of incorrect assumptions made about her education, circumstances, and aspirations and fled the visit with her list of questions unanswered. On the way out, a flyer advertising support for first-time mothers caught her eye; she grabbed one and called the 800 number desperate for support better than what she had just received.

“It’s a joy watching her grow as a mom and young woman.”

A representative at Nurse Family Partnership, a national program that pairs first-time mothers with a dedicated nurse during pregnancy and the first two years of the child’s life, referred Ruth-Ann to RVNAhealth, the local program partner. Melissa Smith, RN, BSN, and RVNAhealth Nurse Supervisor who has been working with Ruth-Ann since that initial phone call considers her “smart, curious, and resourceful.”

“She comes with questions, listens intently to the answers, and then researches things further. She is wise beyond her years and is an exceptional human being. It’s a joy watching her grow as a mom and young woman.” Over time, the two developed a level of trust that likely saved Ruth-Ann’s life…more than once.

Just before Mother’s Day 2020, Ruth-Ann revealed her secret to her mother who works as a live-in Certified Nursing Assistant, alternating weeks between her patient and home. “She was disappointed but acted better than I expected. She took a few hours to process the news and then offered me her unconditional support,” Ruth-Ann recalled. But she hadn’t given her mother the whole story. The baby’s father and Ruth-Ann’s boyfriend, had developed an aggressive temperament since learning of the pregnancy. Determined to have an in-tact family because she experienced a fatherless childhood herself, she navigated his unpredictability as best she could, thinking it was in her baby’s best interest. In the sidelines was Smith, who met Ruth-Ann each week virtually, because of the COVID-19 crisis, to review everything an expectant mother needs to know from the facts about pregnancy and childbirth to stress management and life skills strategies. “We had an instant connection,” Ruth-Ann said, “I immediately felt accepted without any judgement. I could ask her the most embarrassing questions and never felt ashamed or scared. It was exactly what I had been looking for but didn’t know I needed. Every expectant mom should have what I have with Melissa.”

A Rare Genetic Clotting Disorder

During these visits, Smith unearthed a concerning piece of family medical history that resulted in the death of Ruth-Ann’s sister one week after she gave birth. Protein S deficiency is a rare genetic clotting disorder that can result in life-threatening blood clots like the one that took her sister’s life. Ruth-Ann’s prenatal physician, who is not associated with RVNAhealth or Nurse Family Partnership, refused to test her blood levels for Protein S deficiency despite her complaints of excessive fatigue and family history. Smith “empowered me to fight for it,” Ruth-Ann said, “and thank God she did, because that blood test probably saved my life. My voice was quieter before and Melissa helped me amplify it. I wouldn’t have the voice I do now without her.”

In fall 2020, Ruth-Ann delivered a full-term healthy baby girl and soon thereafter confided in Smith about her safety concerns given her partner’s increasing volatility. Smith connected Ruth-Ann with resources specializing in interpersonal violence and in early December she moved back in with mother full-time under a court-issued protective order. “I stayed longer than I should have just so my daughter could be around her dad,” Ruth-Ann said, “but Melissa reminded me that a father doesn’t have to be biological and blood doesn’t make a family.”

“I don’t need to be perfect and it’s okay not to have the answers to things but can be dangerous not to ask questions.”

Today, Ruth-Ann is juggling motherhood of an intelligent, radiant, one-year-old with mischief in her eyes and apple cheeks with a full college course load as she pursues a degree in social work so she can “make life better for others and connect with a wide range of people on a variety of social issues.” A newly elected cabinet member with the Office of Early Childhood, the state agency that funds Nurse Family Partnership, Ruth-Ann was one of 15 chosen in a pool of over 70 applicants to develop solutions for issues facing parents and families statewide. In her spare time, Ruth-Ann is an advocate for RVNAhealth and the Nurse Family Partnership that she attributes to giving her the support and tools to transform her life. She cautions those who are intimidated by the word nurse in the program title because nurses traditionally focus on medical care whereas the NFP nurses help their clients navigate every tentacle associated with new motherhood. “Melissa is my mentor,” Ruth-Ann said, “she’s walked beside me on this entire journey. She reminded me that I don’t need to be perfect and it’s okay not to have the answers to things but can be dangerous not to ask questions.” As for her daughter, the reason she and Smith were brought together, Ruth-Ann says “she’s a mini me…a determined thinker and very curious. She loves books and can express
herself well already. She has a strong voice.”

Just like her mother.

To hear and learn more from Ruth about her RVNAhealth Nurse Family Partnership experience, watch this video

Ridgefield Press | Author: Kaitlin Lyle | September 7, 2022

For new mom and Danbury resident Marcia Valdes, a local program for first-time mothers and their babies has provided an invaluable support system.

Nurse-Family Partnership program has been around for about 40 years – starting in Colorado and making its way to western Connecticut two years ago.

“I love it,” Valdes said of the program. “It’s great because as a first-time mom, you have a lot of questions. You’re always concerned … things change because your life’s changed.”

RVNAhealth enrolled its first client for the program in March 2020, just a week before everything closed down due to the COVID-19 pandemic.

After offering virtual visits during COVID-19, the program is back to doing home visits but continues to offer virtual visits as an option.

Jennifer Taborda, a registered nurse with RVNAhealth, said the program, funded by the state’s Office of Early Childhood, is completely free and voluntary for families.

The program enrolls expecting mothers at 29 weeks or less of pregnancy and the nurses stay with the families until their baby is 2 years old.

Throughout the program, Taborda said the nurses build long-term relationships with the mothers and watch their babies grow. Once the babies turn 2 years old, she said they have graduation ceremonies for the babies.

During their involvement with the program, families are provided with education, support and connections to resources for services like housing, food, and counseling.

Additionally, Taborda said the program’s nurses conduct health, growth and development screenings for the babies and provide education and resources for children, including services that provide early intervention for children that are behind in their development.

“I would say as a first-time mom, having a free program like this is huge,” Taborda said. “Having support, having education – especially for some of our moms who don’t understand what’s happening to their body during pregnancy.”

Taborda said the mothers are educated on what to expect during labor and the risks that could occur. A lot of the time, she said, the mothers don’t have the understanding of what’s going on with their bodies; there are some mothers that didn’t have parents that engaged and played with them. Understanding that it’s okay to get down on the floor and play with one’s child, Taborda said, is educational for both the mothers and their children.

Taborda said the program has helped mothers get their college applications started and set goals for themselves. She said the program strives to set its families up for lifelong success – both for the families and the children – and to make sure they understand the importance of health visits for their children and self care for themselves.

RVNAhealth Director of Community Health and Wellness and Nurse Family Partnership Program Administrator Laura Shulman Cordeira said first-time mothers benefit from the program, in that they’re more likely to have full-term babies and less likely to have low birth weight babies.

Other benefits are mothers are more likely to initiate breastfeeding; attend their prenatal and postpartum appointments; bring their children to their pediatric appointments during their first year of life; set goals for themselves and become more self-sufficient economically.

Through the program, Cordeira said children are less likely to be in the hospital during their first two years of life as a result of an accidental injury; they’re also less likely to have behavioral or intellectual problems at age 6.

Additionally, she said the children involved in the program are less likely to be in any sort of juvenile detention system.

“I mean, it’s really incredible how long-lasting these results can be,” Cordeira said.

Though she’s been a nurse for nine years, Taborda said her work with the Nurse-Family Partnership program is “the first job I feel very connected with and definitely get a sense of fulfillment.”

As a member of a “small, but mighty” team of nurses with the Nurse-Family Partnership program, Taborda is a personal nurse for first-time mothers in Region 5 of Connecticut, which includes the Northwest Corner, Waterbury, Danbury, New Milford, New Hartford and Torrington.

Out of the 37 families enrolled in the Nurse-Family Partnership program, Taborda works with 21 clients – one of whom is Valdes and her 9-month-old son, Anthony.

Valdes was 17 weeks pregnant when she was advised to call the Nurse-Family Partnership program. She said she texted Taborda, who texted back to explain how the program works. They set up a Facetime call to see how things might work and their relationship grew from there.

During her pregnancy, Valdes said she was concerned about her weight, so Taborda gave her a book to help with her nutrition. Now, every other week, Taborda comes to Valdes’ house to visit her and baby Anthony — sometimes bringing formula, diapers, wipes, creams, toys and books and sitting down to play with Anthony while she and Valdes talk.

Among some of her own questions, Valdes said she was concerned when Anthony was between 4 and 6 months and hadn’t yet rolled over. She was also concerned about his sleep because Anthony “was never a good sleeper.”

Opening up about her experiences as a first-time mother, Valdes said her favorite moment is nursing: “It’s challenging, but it’s the moment you have your baby and he needs you and that moment is just the both of you and it’s amazing.”

Reflecting on how she’d encourage others to enroll in the program, Taborda said, “I was a teen mother myself. If I had this program, it would’ve changed my life. There’s so much to learn. The support is just fantastic. … When our moms leave our program, they’re able to advocate for themselves and they’re going to be okay.”